Spotlight on Brian

Brian has required that we extend the same amount of attention to him that we have been giving Andrew. Hence the photo below. Of course Brian has his own style to everything.Who can resist such a cute little tush.

Andrew Update

Here is Andrew starting to be himself again. He's flexing muscles and flashing his smile.More muscle flexing.....

Here he is just being plain ol' silly!!

Happy to be home.

The white middle bandage is for his sternotomy (cutting the sternum/breast bone) incision. The black dot at the bottom of the sternotomy is the stitch for his chest tube that was draining the bleeding around his heart. The red crayola bandage was from the wound left by aspirating the pleural effusion (water around his lungs). The green bandage on his left collar bone was from the central line ( a big triple IV that was placed in the large vessels close to the heart).

ANDREW IS HOME !!!!

He is doing much better now. The water around his lungs has subsided enough that he isn't so labored when he is breathing. He has gotten most of his strength back. We are happy to see his and Mom's face lighten our home. He still has to take a diuretic so that he will continue to get the rest of the fluid out from his lungs. But he can take that orally so they let him return. Thanks to everyone for all your prayers and support.

Some more pictures of our angel Andrew at the hospital. I have a little more free time than usual at the hospital, so as you can see, I have been expirementing with the photo editor.



This picture below is typical of his mood most of the time

Here are some pictures of Andrew from Saturday. He was still a bit narcotized but doing well. Don't be fooled by the smile, it was very forced and that was the only time we have seen it.

Today, Sunday, he is a little more labored in his breathing due to having some fluid collecting in and around his lungs. Theyy will be giving him more diuretic today to try and get it off. If that doesn't work than they will add another diuretic, and if that doesn't work, they will have to put some chest tubes in to drain the fluid out. We are hoping that the diuretics work and hope to avoid the chest tube.

The heart rhythm is still holding solid with the medication being weaned more this morning. We will be staying in the Intensive Care Unit today still. He is eating better too. It seems that his recovery thus far has been a daily "one step forward, two steps back."

Another quick update - - his heart rythm is back to normal and they have started to wean off the medication that is helping him. The rythm is still holding too. He also had his chest tube removed and his foley catheter ( the one draining his bladder) removed.

The biggest joy we had was when he finally pee-pee'd without the catheter. It was no easy event for him. They are giving him a diuretic (stuff to make you pee) because he has a little bit of fluid in one side of his lungs. That was making his bladder distend and become painful. Since he had the catheter in, his penis was painful too. But after much perseverence we struck gold!!! You would have thought that he was having a baby. He immediately fell to sleep after the big ordeal and continues to slumber as I type.

They also stopped the fentanyl (a narcotic like morphine) and started him on an IV equivalent to ibuprofen, as well he can take tylenol with codeine as needed.

He is also starting to cough which is another good little step towards getting home. I think the heart dysrythmia will be the slowest common factor. We'll keep you updated

Just for fun, here is a picture from two years ago of Andrew, its one of my favorites. I can't put any recent pictures up because this computer is incapable.

Well Andrew got most of his tubes taken out today. He had to be put under just a bit today to cauterize a little bleeding from his chest insicion, but that went well. His heart rythms have been getting more and more irregular, but have not been symtomatic. So we will be in the ICU for another day at least but still shooting for only a four day stay at the hospital. They have had to start a medication drip to help the dysrythmia, so we'll see how well that goes. He still has a chest tube to drain the fluid around the heart, and a catheter in his bladder. Thanks for all your support, we'll send the messages along.

Well I am sure most if not all of you know that Andrew is done with his surgery. He is doing quite well. His main complaint is that he is "super super duper duper thirsty". Considering all the other possible things he could be complaining of, I am quite satisfied with that one.

He has been oozing a little more than normal from his surgical site so he has had to get a blood transfusion, and other blood products that help you clot. It shouldn't be to much of a problem by tomorrow.

I am posting this from his room, so you can check back here or call Mom and Dad for updates. We can't have our cell phones on in the intensive care unit making it hard to reach us. Love you all and thank you for your prayers and support.

Off to Battle!!!

Our little Andrew goes in this Thursday for open heart surgery. He has a congenital heart defect named a "mitral valve cleft". Simply put, it is a whole in his mitral valve, the valve between the left ventricle and left atrium. The cleft/whole is large enough that it has caused his ventricle to enlarge faster than he is growing. So he'll get a sternotomy (saw open his sternum/breast bone), his heart and lungs will be stopped and he'll be put on a heart-lung machine. They'll make an incision into the atrium, sew the cleft together and then close everything on the way out. He should be in the hospital for about four days, hopefully coming home on Monday.

Came across some funny videos on you tube.

Potter Puppet Pals in "The Mysterious Ticking Noise"

http://www.youtube.com/watch?v=Tx1XIm6q4r4&feature=related

Hahaha -baby laughing

http://www.youtube.com/watch?v=5P6UU6m3cqk&feature=related
If Kevin had strawberry blonde hair, we could've sworn this was Jenny's baby

Happy Laughing

The Big One

Just a quick preview of the most recent pictures I have taken of Eric. This is his science project.

More Later...

So I thought that I would put some photos up of the children, starting with Eric. Here is Eric and Andrew fighting over a door, yet polite enough to look at Dad as he snaps a photo.

















Eric did his last Pinewood Derby. He wanted to do Perry the Platypus, from the Disney Channel's Phineous and Ferb. We thought is was a pretty cool car.

Taking time I don't have to blog = no captions